Category Archives: Yoga

Limb and life

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It has been over two years since I last added to this narrative. My silence has not been for lack of things to write about, but rather the topic I felt it most necessary to tackle has seemed impossible to share.

Around three years ago, having thoroughly worn out the legs I’d brought from Canada, I started seeing a prosthetist in Australia. My challenge in finding a suitably experienced prosthetist has always been that the rotationplasty procedure (what I chose in the wake of my cancer treatment to give me the foot/knee articulation I have as an adult) is not performed in this country. In fact, they are performed infrequently enough in other parts of the world that the pool of people with rotationplasties in Australia is miniscule. I know of one other. There are probably a handful of people with a little foot (LF) across Australia. The prosthetist I chose to consult with was based at a clinic in Sydney that had a great reputation, and I knew they had fitted one rotationplasty previously.

My interaction with the clinic in Sydney did not go well. A repair to my existing Canadian-built prosthetic damaged its joints, causing hyperextension to LF, which led to swelling. Up to that point, I had never had any problem with LF in the more than 20 years since the initial surgery. And the new prosthetics they built never fit right – the swelling reoccurred. A reoccurred – despite numerous tear downs and rebuilds the prosthesis’ socket was never adequate. The swelling persisted, both in my toes and on the side of my ankle.

The clinic and I ultimately spent a year tinkering and I spent the same time period getting by. When the prosthetist finally said, “I don’t know what else to do”, I went to see a rehab specialist. After some months of waiting for an appointment, the specialist and his team (that consisted of an intern, resident, physiotherapist, prosthetist, and probably others) considered my case and… shrugged their collective shoulders.

That was when I first lost it, saying, “You’ve got to have something more to offer than that!” The specialist sent me for an MRI.

After five months of waiting on an MRI appointment, the scanned showed swelling of Little Foot’s ankle and over the toes (No sh*t… ? Sigh). No obvious structural damage was evident in the images, although apparently the quality of the image was ‘really poor’. It would have been nice to know that at the time – that’s two and a half hours spent in a whirring tube playing Jumble® with the word ‘Siemens’ that I’ll never get back.

I started seeing a different prosthetist last January. I met him climbing, as one might expect. His professional training was trained in Germany, where rotationplasties are at least performed. He had actually seen a couple of examples of the procedure before mine. And. He is extremely committed.

However, the challenge I present to a prosthetist of course has grown. Poor LF has now been swollen for close to three years. Every time the new prosthetist and I try a different socket the fluid shifts. It’s a bit like chasing a moving target where the difference between a bull’s eye and abject failure is millimetres.

I have tried everything I can think of to reduce the swelling – cold therapy, massage, lotions and potions of all sorts, elevation, compression, inversion postures… the cold and compression seem to shift the swelling temporarily, but it quickly returns when I’m wearing my prosthetic. I’m about to embark on a trial of a diuretic, which I will take while attempting to avoid wearing my prosthetic as much as possible. That’s sure to be a treat – I’ll be producing more pee and need to hop to get around. The final alternative, I suppose, will be to not wear my prosthetic at all until the swelling resolves.

Needless to say, I’m worn pretty thin. When I’m at my best I am grateful –  grateful for the medical resources to which I have access, grateful for my understanding of pathophysiology, grateful that I’m still very mobile, grateful that I can still climb with some ability, grateful that I can still get up and do my yoga practice.

But when I’m not at my best my mind drifts to a future that may or may not come to be. A future in which I need to find another job. One in which my financial security is compromised. One where my independence is under threat. One filled with physical regression as opposed to progression. A future where I cannot walk.

So yeah, when I’m not at my best, I worry this part of the journey is only beginning.

Don’t Buy the Big Bag of Dog Food

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When I was in Vet School, I had this professor who would occasionally drop the phrase “Don’t buy the big bag of dog food”. He didn’t intend his comment to be insensitive, or EVER used with clients. Instead he employed it as a tool to link specific disease conditions with a prognosis. For the record, his expression had the intended impact.

This came to mind when I was having a conversation with Cathie Coward, the woman who took the photographs of me you might have seen in my posts ‘Function / Form’ and ‘Our Cancer Lexicon’.

Cathie and I recently got together while I was in Hamilton visiting my family. We hadn’t been in touch for many years, until I emailed her about this SGL blog project. She and I agreed that perhaps some ‘twenty years later’ pictures would be an interesting undertaking, so we spent a day out together, during which I got on a climbing route or two and put myself into a few yoga postures. Cathie also recorded a bunch of audio for an article that was to be published in the Hamilton Spectator.

As a starting point to our conversation Cathie had me flip through Kate’s Story – something I hadn’t done in a very long time. She mentioned a picture I couldn’t recall, from a bone scan that was done around the time I was diagnosed. She recounted showing this image to a physician friend of hers while telling him about the Kate’s Story concept. She told me that when this man saw the image he advised her “don’t get too attached to this little girl…” the human medicine equivalent to “Don’t buy the big bag of dog food”.

I was taken aback when she told me about this conversation, and even more so when I looked again at the image that I hadn’t seen in so long – it clearly shows just how extensive the bone cancer was in my left femur. As a veterinarian today, my interpretation would have been similar to that of the physician back then.

If I think back I can get a handle on the idea that I walked a tenuous line during that period. There were times when I was really sick from the chemotherapy, and I suspect now that the situation was quite precarious.

Unexplainably, back then, the end of my life at a young age never really occurred to me. Though the experience left a lasting impression. Today, I feel acutely aware that, while life is not short, time is indeed quite precious. It makes me tap my one foot when someone is late for a date.

Alright, until next time… For the truly rabid fan-folk, here’s a link to the article I’m talking about and a few recent pictures that didn’t make the cut to the newspaper page.

 © Cathie Coward

 © Cathie Coward

 © Cathie Coward

  © Cathie Coward

I’d Like To Thank The Academy

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From time to time someone tells me I’m inspiring.

Now, don’t get me wrong. Being told I’m inspiring is really nice to hear, particularly in the context of my writing, where I feel like I lay everything out for all to see. Often, though, the compliment comes in the context of ‘you bike, ski, climb, practice yoga, surf, train hard… You don’t let it stop you!’ And yeah, it’s nice to hear in this context too. But always, in the back of my mind, I feel like a bit of a fraud.

The thing is – I’m not particularly good at anything athletic. I’m about as far from ‘a natural’ as you can get. It also never occurs to me that it, being my artificial leg, is something that should stop me. I engage in active pursuits because I want to, because they’re fun, and rewarding, and enriching, and challenging. Whenever I am trying something new, the thought that ‘this is something that I can’t do, or shouldn’t be doing, because of my artificial leg’ never really occurs to me. Looking back, I think the reason this doubt doesn’t interfere has little to do with me, and much more to do with a couple of key early influences, combined with good fortune later in life (such as my visit to Jeff and Harmony, described previously).

One of those influences was my mother. She is a fierce lady. The stories I remember her telling during my childhood were about her days at the University of Queens, where she graduated with an honors degree in mathematics. Her class included only the second, third, and fourth women to do so. I also remember her telling stories of the non-Caucasian men she dated in those days. Her mother encouraged neither the maths nor the men, any more than did the society of the day. Intentional or not, I think the message I took away, very much unconsciously, was ‘you don’t drink the Kool-aid just because it’s what you’re being offered’.

I’ve always been one to mull things over (a reasonably apt critical thinker? I don’t know). I suspect I started questioning some social norms unconsciously, and very early on. As time has passed this process has become more conscious.

So. After I learned to walk again, it seemed only logical that I would learn to bike and ski again. And, as part of my rehabilitation, I took up swimming, and it turned out I was all right at it. So why not become a lifeguard? What is it about climbing that makes it not possible with three limbs?… And so on. I never consciously went through this thought process, but I must have decided somewhere along the line.

I never got to pick my mom, or the country I was born in, or my diagnosis with childhood cancer. I happen to be a bit (well, maybe a lot) of an endorphin junkie, and I love being active. I’m stoked that people find me inspiring, because I love to be inspired in turn, and love that there are people out there doing things that I find inspiring, but I can’t deny that it all seems a bit… normal.

Seminal Moments

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We all have them – those points in our lives that we consider in hindsight and go ‘wow, my life would have been completely different had I not…’

One from my recent past that comes to mind is the day I walked into my first Ashtanga Yoga Mysore class taught by Jeff and Harmony Lichty.

Hindsight, as they say, is 20/20. To be clear, I had no idea what I was getting into.

What led me to yoga was years of hip pain. Years of experience clouding, constant, hip pain. I had tried everything – chiropractic, massage therapy, active release, acupuncture. All modalities alleviated my discomfort to some degree but the relief was always transient. There had been times when I was having something done to my hips two or three days a week just to keep the discomfort manageable.

When I moved to Calgary in 2007 I had limited health insurance through the university and therefore I knew that any treatment I pursued was going to be paid for mostly out of pocket.  And I was tired of spending my time going back and forth to appointments. I had begun to think about what was going to happen to my hips as I got older and figured it was time to try something else.

At the time I had barely dabbled in any kind of yoga. I had followed a couple of DVDs, been to maybe a couple of led classes, but that had been it. I did what everyone does in this day and age when I moved to Calgary – I consulted the Internet and found Yoga Shala Calgary. I read a little bit about Mysore style yoga, looked at the schedule and thought ‘Oh, that will work. Classes are in the morning so I can go to the gym and study in the afternoon.’

So one morning in September 2007 I walked into Yoga Shala Calgary and met Jeff and Harmony. At that point they were teaching in Calgary having returned from another stint in India and both had been authorized by Shri K Pattabhi Jois.

My earliest impression of them was that they did not see my prosthetic as something to overcome, they just saw what was possible. That first day they asked for a show and tell and were enthusiastic and excited about the fact that I had come in. I did not get a whiff of uncertainty or hesitation from either of them, and that is an approach to teaching and learning that I think many would say they try to adopt but few really achieve. And so I started going.

It took some time, as I think it probably does for most, to incorporate my yoga practice into my routine but after a few months I was pretty regular. And I can remember when the hip pain really started to change. Toward the end of 2008 I spent a month in Goa practicing with Jeff and Harmony. Before travelling to Goa I had been in Sri Lanka for two months conducting research as part of my PhD. Prior to that time, a three-month stretch with no treatment on my hips would have left me in agony. But for the first time in years I wasn’t. I practiced close-to-daily on my own in Sri Lanka and then six days a week in Goa and I was hip-pain free.

I still have flair ups from time to time, but they are very seldom and nothing like they used to be. And while the lack of hip pain has been life changing and truly a blessing, yoga has also brought many wonderful experiences and connections to my life.